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Every Time This Girl Went Out.. She Came Back Screaming Inside!

Isn't it shocking if someone step outside from home and then comes back screaming loudly with pain. Each person do have their own thoughts and beliefs about this.

When Savannah Fulkerson was 4-year-old, she used to scream loudly with severe pain and allergy whenever she stepped out. Her mother explains, “uncontrollable screaming like she got hit by a car, and would cry for hours.” Let's know more about her disease.

Every Time This Girl Went Out.. She Came Back Screaming Inside!

Every Time This Girl Went Out.. She Came Back Screaming Inside!

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  in Health & Fitness

The poor girl suffering with rare skin condition.

The poor girl suffering with rare skin condition.

Know about the rare skin disorder from both mother and daughter.

Know about the rare skin disorder from both mother and daughter.

Her mother tells, "uncontrollable screaming like she got hit by a car, and would cry for hours." Her skin used to burn and scar. Even her parents couldn't figure out what was happening to her. Then finally, they met a medical specialist.

She is suffering with Erythropoietic Porphyry (EPP).

She is suffering with Erythropoietic Porphyry (EPP).

The dermatologist diagnosed that she is suffering from a severe sensitivity to sunlight. This is dangerous. So, she has to take extra precautions about this.

She has to do preparations for going outside.

She has to do preparations for going outside.

Whenever she goes outside in the daytime, she has to wear special clothes to prevent from sun's rays. Savannah tells, her this condition makes her target to bully by other kids.

She met to other kids who're suffering with this.

She met to other kids who're suffering with this.

Because of her skin condition, she has to do indoor activities so it becomes quite difficult for a growing kid to stay bound. Luckily, she got the kids who suffering from the same condition as she joined Camp Sundown in NYC.

Promising Medication

Promising Medication

The drug increases the skin's melanin which resist to burn but let the skin to tan. Europe, and the FDA using the medication but it is still pending in US.

EPP Symptoms.

EPP Symptoms.

The Dermatologist Dr. Minnelly Luu tells if anybody has severe skin burning while in sunlight and the hands as well face become red then the person should seek a skin specialist.

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