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IN People ON 03 Oct, 2016
The Webb siblings, Hayley and Lachlan have been diagnosed with Fatal Familial Insomnia (FFI), which is known to be a very rare disorder of the brain. It means they can never fall asleep in their life and this is nothing lesser than a danger.
The siblings started noticing their symptoms when they were teens and now they're 28 and 30, desperately hoping for a miracle.
It is a rare disorder of the brain which is genetic in origin. It is said that one person in ten million people suffers from this disease.
They knew that their grandmother and mother suffered from the same disease. The disease eventually killed them and it is bound to kill the Webb siblings as well unless any miracle happens.
Both siblings are admitted in a research center at the University of California. Various tests are being conducted on them to find a cure. Both siblings hope that a cure will be found before the illness takes their lives.
It was clear to them that they suffered from the family curse. The siblings noticed their vision get affected and she had also started hallucinating. Her brain function began to decline and she finally died due to the disease.
When the siblings were young, the family started discussing this disease, they didn't even know something like that even existed. Soon after their grandmother died due to the disease, their mother started showing similar symptoms.
The siblings said that the course of the disease starts with a constant feeling of exhaustion and then it leads to a decline in mental and physical capabilities. Their mother started hallucinating at the end when she developed a full-blown FFI.
But currently, there is no cure to this disease.