Having a rare genetic condition is difficult, not only because it is painful, but also because it can be hard for others to understand just how much you are going through every single day.
Thankfully, Claudia is a brave woman who is willing to share her experiences with others. Hopefully, more can be done for people with such conditions.
Read her story below.
Claudia is a beautiful 20-year-old woman who needs a wheelchair whenever she wants to move somewhere far.
Claudia was diagnosed with POTS, which is short for Postural Orthostatic Tachycardia Syndrome. She found out about it when she went to the gynaecologist after feeling severe pain in her pelvic area.
Postural Orthostatic Tachycardia Syndrome makes standing up difficult for those who have the condition. Whenever one with POTS stands up, the heart rate would rise immediately.
If Claudia did try to stand up for a bit, she would eventually faint because of the rising heart rate.
Even before Claudia developed POTS, she already had endometriosis, which is a condition that causes pelvic pain. This is why she decided to create a blog named Sick & Tired - Living with Chronic Illness.
Claudia made the blog when she was 19, and she adds photos to show her treatments and medications.
She spends most of her everyday life on the bed because even sitting up can be painful. Whenever she wakes up in the morning, her heart rate reaches almost 150 BPM and hence she requires medicine early on. Claudia can only go to the kitchen from her bedroom and then back on her bed before she faints.
Recently, Claudia's blog followers showed love and pray for her and she became popular online. It was a relevant story in the Endometriosis Awareness Month.
Claudia's fourth gynaecologist told her that she should have birth control put into her uterus, aside from talking to pain specialists, getting botox in her pelvic area, and undergoing laparoscopy.
Even if she has to be fed using a tube because of another health problem, known as gastroparesis that ruins her stomach's functions, Claudia remains strong and inspired to blog about her life.