This story now
IN People ON 02 Feb, 2016
Every day over the internet, we come across some really heartbreaking stories. Out of these some stories are unforgettable as it is impossible to resist our soul from getting connected to them. One such story is of a 5-year-old girl who has to go through the pain of laser every six weeks due to Sturge-Weber Syndrome (SWS).
Whenever any pointed thing pricks our body, we shout out loud, don't we? Just imagine how hard it could get for a baby girl to bear the pain of lasers that are ten times painful than a sharp object.
Her story does not end here, she has a lot to say.
Baby Matilda Callaghan is suffering from a rare neurological and skin disorder that causes purple dots to appear on her face. If it is not controlled, it could spread to her mouth, teeth, internal organs and her brain. This is the reason behind her laser treatment that has to happen every six weeks.
Due to SWS, Matilda is facing paralysis and seizures, which have limited her mobility and her limbs are out of shape, because of which she can't walk.
Along with SWS, the baby was born with two holes in her heart and was also suffering from glaucoma, epilepsy and digestion problems.
.. Matilda can only say 'yes' and 'no, 'mummy' and 'daddy.
Matilda likes outing, though she doesn't have a clear vision, but she loves to enjoy the countryside. "We want to be able to take her for walks in the countryside - we like to get out as much as we can, but, we don't have a lot of money, so we can't afford it or get away on holidays, that's our escape", said her dad. They don't have enough money to buy a wheelchair for Matilda, which she desperately needs to walk. It is costing them around £5,000 and they're trying their best to raise funds for the same cause.
The day before today, her parents announced online about their fundraising target which has been completed. They wrote: 'We can not thank everyone enough for all the love and support they have shown Matilda." 'Her chair is on order, and she should hopefully get it in about 6 weeks. Can't wait to post pictures of her on it.' I pray to God to give her all happiness she deserve and also request you to share.