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IN People ON 30 Dec, 2015
This story is about two brothers, Kian and Callum Jarram born with Adams-Oliver disease, a rare syndrome which results in the premature growth of hands and feet, and they have stumps instead of feet.
But this Christmas was different for them, and now they'll be playing soccer too!
Images via dailymail
Both the boys have inherited this disorder from their father. This disorder leads to the premature growth of hands and legs, leaving the affected person with some fingers and stumps instead of feet.
This disorder is very rare, so much so that it has just affected only 125 people in the world. It is only the Jarrams in England that are known to have this disorder.
The father of Kian and Callum has been desperate to get the boys silicone prosthetic feet. This could not be funded by NHS, so he decided to create a fundraising page. This page was then supported by family, friends and strangers in masses and they were finally able to raise 8,000 pounds.
Mr. Jarram has always taught the boys not to be ashamed of their feet and embrace it. He feels that the syndrome has built a very different connection between the three of them.
This is the best Christmas gift for boys as both of them are huge football fans.
The prosthetics are a huge relief to the boys because the stumps used to become sore and painful. They can now easily kick the ball and play without pain.
"The first thing they said when I told them about these feet was that they just want to be able to wear flip flops" says Jon Jarram, 35. However, Chloe, the sister of the brothers has not been affected by the disorder. It seems like the disorder has only been inherited by the men in the family.
The syndrome has also left Callum with 2 fingers in one and 3 on the other hand. Kian has 5 little fingers in one and 3 in the other hand.
According to Mr Jarram, prosthetic feet are a boon for the people suffering from Adams Oliver disorder as they help them to walk in a much comfortable manner.
Mr. Jarram says, "Both the boys and myself are so grateful, it just means so much to them and it really will be life changing."
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