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Encephalocele is a condition wherein the brain grows through the nose. It is a very rare condition, and one that 21-month-old baby Ollie Trezise has, making him look like a real-life Pinocchio! Of course, his looks have invited a lot of unpleasing comments from children and adults alike. But there are also those who find him adorable.
Anyway, whatever you may think of his looks, one thing still does remain unchanged - that he truly seems to be a real-life pinocchio!
Poole, the mother, discovered her son's condition during her 20-week ultrasound. There seemed to be an unexpected growth of soft tissue on the baby's nose. And although they were all prepared for what was coming, it was still a surprise when he was born! "He was so tiny, but there was this enormous golf-ball sized lump on his nose," Poole said. "At first I wasn't sure how I would cope. But I knew that I would love him no matter what he looked like."
The doctors confirmed that Ollie had a rare condition: encephalocele. As a result of a crack in the skull, Ollie's brain continued to grow in a sac through his nose. As Ollie grew, so did his nose.
The growth on the nose was causing Ollie to face problems in breathing. Apart from that, this condition can cause several other severe problems, such as developmental delays. And so, the doctors concluded that there was a need to operate on the baby.
"I was so scared to let Ollie undergo such major surgery. He was so fragile, and I couldn't bear the thought of losing him," Poole said. "But doctors explained that he was at risk of contracting an infection or even meningitis if he tripped and knocked his nose - so I agreed to the surgery."
Ollie soon made a full recovery, which is great news! He even has an older 4-year-old sister, Annabelle, who simply loves to play with him! "Annabelle is even jealous of Ollie's nose as it gets him lots of attention," says the mother. "Sometimes I catch her grabbing it when she thinks I'm not looking."
Ollie needs further operations, but the doctors can't perform any of them until his skull develops further. Meanwhile, his mother is worried about the bullying Ollie will face outside, which almost obviously will happen. "Ollie will probably never look like all the other children and I'm terrified that he will be bullied at school," Poole said. "I don't want other kids to face the nasty comments that Ollie has, and I think the best way to combat this is by educating people."
Poole sees her son as a perfection. Ollie is the apple of her eye.